some projects:
www.healthregistry.net
patient records, genetic datasets, scoring systems, collaborative software, statistical analysis

ComboScore adaptable scoring system
plg-rbdd
Misto published the stable release of the PLG international registry focused on Plasminogen deficiency
pro-rbd
network per la ricerca sulle coagulopatie rare
eu.rbdd.org
en-rbd
network europeo sui disordini rari del sangue
www.rbdd.eu

ttp network
ricerca scientifica sulla Porpora Trombotica
www.ttpdatabase.org
menorrhagia
per lo studio e la ricerca sulla menorragia ed altri problemi ginecologici
ra-registry
registro internazionale rbd
www.rbdd.org







